Overview
The systems in our State are operating every day to ensure quality supports and services are delivered to New Yorkers with developmental disabilities. We are committed to open dialogue, including sharing this data so that you can stay informed as we continue to help more and more people experience a full life based on their unique needs and choices.
This data provides information on the characteristics of people with developmental disabilities in New York State covered under the Medicaid program and the types of services they receive.
Understanding the Data
Download a fact sheet breaking down the types of services and terms referenced in the data.
Services and Funding for People with Developmental Disabilities
The source of the data, also referred to as claims data, reflects reimbursement or payments related to the delivery of health services. Due to the requirements around the information needed to determine the payment/reimbursement of a claim, this data is more reliable and more commonly used to describe services and supports.
The payments in this analysis reflect the gross (all shares) expenditures for OPWDD Medicaid services. In the Medicaid program, the federal government, state and localities contribute to the cost care and are responsible for a portion, or share, of the gross payment.
Medicaid Services at OPWDD
Table 1. People and Payments by Year
| Year | People | Payments |
|---|---|---|
| 2014 | 107,071 | $6,605,281,600 |
| 2015 | 110,457 | $6,840,258,089 |
| 2016 | 113,559 | $7,108,643,045 |
| 2017 | 115,574 | $7,323,228,240 |
| 2018 | 117,934 | $7,631,116,429 |
| 2019 | 119,842 | $8,227,355,487 |
| 2020 | 121,916 | $8,513,714,881 |
| 2021 | 123,969 | $8,034,117,468 |
| 2022 | 126,925 | $8,382,755,088 |
People Receiving OPWDD Medicaid Services
See a breakdown of people receiving Medicaid services in 2022 by sex, ethnicity and age group.
People Receiving OPWDD Medicaid Services and Payments by County
See a breakdown of people receiving Medicaid services and payments in 2022 by County.
Understanding Primary Diagnosis
People with developmental disabilities may have multiple diagnoses. For example, a person with a primary diagnosis of intellectual disability may also have a secondary diagnosis of epilepsy.
The primary diagnosis is identified for people during the determination of eligibility for Medicaid services.
While additional or co-occurring conditions may be identified, the primary diagnosis is required and can be accurately reported.
Services Funded
By Fee-for-Service Medicaid
A breakdown of services, people and payments for OPWDD care a Comprehensive HCBS...
A breakdown of services, people and payments for OPWDD care a State Plan...
By the FIDA-IDD Managed Care Program
A breakdown of services and people for OPWDD care a Comprehensive HCBS Waiver...
A breakdown of services and people for OPWDD care a State Plan Services
Regional Data Story for Strategic Planning
The OPWDD Medicaid Expenditures Regional Story provides information on services and supports delivered to people with developmental disabilities through a series of dashboards. The OPWDD Medicaid Expenditures Regional Story provides data on total expenditures, average expenditures, and total utilization by individual characteristics (e.g., region, age group), service characteristics (e.g., service type) and agency.
Data Book for Strategic Planning
The data book provides information on past utilization to help inform future planning.
National Core Indicators (NCI)
The National Core Indicators Intellectual and Developmental Disabilities (NCI-IDD) State of the Workforce Survey is a national effort to collect large-scale information on the DSP workforce. OPWDD voluntary provider agencies have been participating in the NCI-IDD State of the Workforce Survey since 2017.