Understanding the Data
- It is important to note that the COVID-19 health emergency has had a significant impact on all CCOs’ operations, therefore, the data presented in this report may not be representative of timelines or demographical information during a typical year.
- The Care Coordination Organization/Health Home Care Management Profile provides an overview of enrollment and care planning information for individuals with intellectual and/or developmental disabilities receiving OPWDD services.
- The data displayed in this report represents statistics as of the end of calendar year 2020 with accompanying detail on data movements during January - December 2020.
- The data is compiled from CCO roster data as well as self-reported information from the CCOs that is submitted to OPWDD.
- Health Home Care Management is also known as Care Coordination, which are services provided by Care Coordination Organizations (CCOs). There are seven CCOs operating across New York State.
CCO/Health Home Care Management Enrollment
Figure 1: People Receiving Care Management Services by Program Type (2020)

A total of 17,060 individuals new to OPWDD care management enrolled in CCOs since the July 2018 implementation (7,301 of these individuals enrolled in the 2020 calendar year).
Individuals have a choice of two service options. The number of people receiving either Health Home or Home and Community Based Services (HCBS) Basic Plan Support has remained constant at 97% and 3% respectively, since the implementation of CCOs (see Figure1).
Figure 2: People Receiving Care Management Services by Program Type and Care Coordination Organization (as of December 31, 2020)
| Advance Care Alliance | Care Design NY | Life Plan | Person Centered Services | Prime Care Coordination | Southern Tier Connect | Tri-County Care | Total | |
|---|---|---|---|---|---|---|---|---|
| Health Home Services | 23,577 | 26,143 | 17,992 | 16,621 | 7,795 | 1,168 | 13,442 | 106,738 |
| HCBS Basic Plan Support Services | 1,056 | 767 | 442 | 499 | 146 | 36 | 234 | 3,180 |
| Total | 24,633 | 26,910 | 18,434 | 17,120 | 7,941 | 1,204 | 13,676 | 109,918 |
Figure 3: People Receiving Care Management Services by Care Coordination Organization (2020)

Figure 4: People New to Receiving Care Management Services [1]
| Care Coordination Organization | New to CM (August 2018 – December 2019) | New to CM (January 2020 – December 2020) | Total |
|---|---|---|---|
| Advance Care Alliance | 1,312 | 885 | 2,197 |
| Care Design NY | 2,653 | 1,381 | 4,034 |
| Life Plan | 1,296 | 948 | 2,244 |
| Person Centered Services | 827 | 724 | 1,551 |
| Prime Care Coordination | 1,068 | 737 | 1,805 |
| Southern Tier Connect | 144 | 124 | 268 |
| Tri-County Care | 2,459 | 2,502 | 4,961 |
| Total | 9,759 | 7,301 | 17,060 |
[1] Since January 1 through December 31, 2020, an additional 7,301 people enrolled in CCOs. On average only 1% of new enrollees select Basic HCBS Plan Support Services.
CCO Disenrollment
Figure 5: Total People Disenrolled from a CCO (2020) [2]
| Total Enrollments (as of December 31, 2020) |
Total Disenrolled 2020 January – December |
Percentage of Disenrolled compared to Total Enrollments | |
|---|---|---|---|
| Advance Care Alliance | 24,633 | 1,245 | 5.05% |
| Care Design NY | 26,910 | 1,471 | 5.47% |
| Life Plan | 18,434 | 837 | 4.54% |
| Person Centered Services | 17,120 | 734 | 4.29% |
| Prime Care Coordination | 7,941 | 450 | 5.67% |
| Southern Tier Connect | 1,204 | 78 | 6.48% |
| Tri-County Care | 13,676 | 515 | 3.77% |
| Grand Total | 109,918 | 5,330 | 4.85% |
[2] This data includes people who transferred from one CCO to another but who are still enrolled in a CCO (see figure 6).
Figure 6: Disenrollment Count by Reason (2020) [3]
| Reason for Disenrollment | Jan-Dec 2020 Count |
Jan-Dec 2020 % of Total Disenrollment |
ACA | CDNY | LP | PCS | PCC | STC | TCC |
|---|---|---|---|---|---|---|---|---|---|
| Enrolled in Another Comprehensive Care Management Program Not Delivered Through a CCO | 369 | 6.92% | 45 | 247 | 15 | 16 | 17 | 0 | 29 |
| Ineligible for Medicaid | 141 | 2.65% | 14 | 19 | 24 | 45 | 19 | 1 | 19 |
| Moved Out of State | 716 | 13.43% | 149 | 176 | 120 | 89 | 59 | 14 | 109 |
| Not Residing in a CCO Eligible Setting | 570 | 10.69% | 100 | 129 | 114 | 119 | 49 | 8 | 51 |
| Passed Away | 1,523 | 28.57% | 313 | 507 | 291 | 229 | 82 | 12 | 89 |
| Requirements Not Met for Level of Care | 279 | 5.23% | 68 | 38 | 59 | 30 | 31 | 0 | 53 |
| Transferred to Another CCO [4] | 940 | 17.64% | 401 | 153 | 114 | 65 | 84 | 29 | 94 |
| Voluntary Withdrawal from CCO | 792 | 14.86% | 155 | 202 | 100 | 141 | 109 | 14 | 71 |
| Grand Total | 5,330 | 1,245 | 1,471 | 837 | 734 | 450 | 78 | 515 |
[3] Data Source = Roster, CCO2 Forms Completed in CHOICES by CCOs.
[4] The Reason for Disenrollment “Transferred to another CCO” also includes 70 people (or 7% of the category total) who moved out of the CCO’s catchment area.
CCO/Health Home Care Management Care Planning
Figure 7: Completion of Life Plans for New Enrollees (Q1-Q3 2020) [5]
| CCO Name | 90 Days Q1-3 | 120 Days q1-3 | 180 Days Q1-3 |
|---|---|---|---|
| Advance Care Alliance | 46% | 62% | 76% |
| Care Design NY | 69% | 87% | 97% |
| Life Plan | 85% | 96% | 98% |
| Person Centered Services | 53% | 77% | 90% |
| Prime Care Coordination | 38% | 53% | 71% |
| Southern Tier Connect | 45% | 58% | 66% |
| Tri-County Care | 83% | 89% | 93% |
| Statewide Weighted Average | 68% | 81% | 89% |
[5] Typically, CCOs have 90 days from CCO enrollment (or HCBS Waiver enrollment, whichever comes first) to finalize an initial Life Plan for individuals new to CCO services. During the COVID-19 health emergency timelines were extended. As such, calculations in Figure 7 were based on 120 days and 180 days instead of 90 days for Life Plan completion. Only enrollees new to care management who enrolled between January 1 and September 1, 2020 (Q1-Q3) were included in the data analysis as the majority of individuals enrolling in Q4 (October 1-December 1) have until on or after January 1, 2021 to finalize an initial Life Plan.
Figure 8: Completion of Annual Life Plans for All Enrollees (2020) [6]
| CCO Name | Percent of Annual Life Plans Completed (January – December 2020) |
|---|---|
| Advance Care Alliance | 88% |
| Care Design NY | 93% |
| Life Plan | 100% |
| Person Centered Services | 93% |
| Prime Care Coordination | 93% |
| Southern Tier Connect | 95% |
| Tri-County Care | 92% |
| Statewide Weighted Average | 93% |
[6] CCOs perform annual assessments to inform the review and revision of Health Home and Basic Plan Support Life Plans annually for all enrollees. Figure 8 depicts the percent of total enrollee annual Life Plans finalized.