Office for People With Developmental Disabilities

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Brain and Tissue Bank for Research in Developmental Disabilities and Aging

09/27/17

New York State Department of Health license for Nontransplant Anatomic Bank # NA009

Bank owner: NYS Institute for Basic Research in Developmental Disabilities 

Jerzy Wegiel, VMD, PhD, Director

jerzy.wegiel@opwdd.ny.gov

Human brain tissue is an irreplaceable source of information about the etiology of, and mechanisms underlying, developmental disorders and is a major factor driving research progress. For donors and their families, dynamically developing science offers the best hope for cures and treatments. Bank activities include the acquisition, processing, storage, and distribution of brain and other organ specimens for medical research and education. The goal of the Brain and Tissue Bank is to provide anonymous coded postmortem tissue samples for neuropathological, biochemical, and genetic studies concentrating on diagnostic biomarkers, mechanisms, prevention, and treatment of autism spectrum disorder, Down syndrome, fragile X syndrome, epilepsy, intellectual deficits, chronic traumatic brain injury, and neurodegenerative disorders. To increase access of researchers to material from rare developmental disorders, the Bank has implemented the distribution of brain sections from a collection of 0.5-million preserved serial sections. Federal and state support and donations of the brains of individuals affected by neurodevelopmental disorders and of non-affected individuals are crucial for further progress in research on developmental disabilities and their prevention and treatment.